For 2014, we are planning awareness and fund raising events in Europe around Cystic Fibrosis.
Cystic Fibrosis is a wide spread inherited chronic disease that affects the lungs of children and adults. A defective gene causes the body to produce more salt and a thick mucus that clogs the lungs and leads to life-threatening infections…
This is a competition with time – until the medication is available, only intense daily care by the parents, medical staff and the brave children stops the infections: inhalations and an incredibly strong will fight against the dangerous viruses.
In the last five years, medical research and development made huge progress and we are hoping for ground-breaking new medications product that will work directly on the gene and
will save many lives of children and adults.
In the United States, a lot of public interest and sympathy is taken into CF.
Thus, it is well-known and people with CF receive valuable moral support.
In Europe, the public is not very much aware of CF. This is what we want to change.
We plan to spread the American spirit of solidarity, hands on and optimism in partnership with
the Cystic Fibrosis Foundation www.cff.org the U.S. Embassies, the Diplomatic Academy www.da-vienna.ac.at
and the local CF self-help groups.